I will update this as often as I receive new info. these are just links on epilepsy sites and active..I dont have the names to themyet but I will add as I can.
http://www.coping-with-epilepsy.com/forums/
http://neurotalk.psychcentral.com/
http://www.epilepsy.com/
http://www.stixdesigns.com.au/epilepsy-support/index.html
http://www.epilepsynse.org.uk/